Well, I unintentionally took about a 6 month hiatus from this blog. I'd like to say that was because nothing was really happening in our rare disease journey, but there's always something going on. An update on Elliot: Elliot has been doing well overall medically. We continue to do weekly speech and feeding therapy. We have taken a break from doing occupational and physical therapy but are considering restarting those services. I'm hopeful that Kidz Club will be offering thos
