Well, I took another unintentional break from posting on the blog. And to be honest, I think my posts will start being less frequent in general. Partially because we are just busier, and partially because we have less going on medically right now. Since my last post, we've had our follow up with neurosurgery. Unfortunately, the chiari decompression and tethered cord surgeries still have not shown to help improve Elliot's spinal syrinxes. We will continue to monitor these, but
Well, I unintentionally took about a 6 month hiatus from this blog. I'd like to say that was because nothing was really happening in our rare disease journey, but there's always something going on. An update on Elliot: Elliot has been doing well overall medically. We continue to do weekly speech and feeding therapy. We have taken a break from doing occupational and physical therapy but are considering restarting those services. I'm hopeful that Kidz Club will be offering thos
